The next day, we drove to the hospital at 5:30 am (luckily we were the first procedure at 8:30 AM). She had awesome nurses and 3 child life specialists that came in a played "nurse" with her. They brought in a doll and let her put a little IV in the arm and put tape on it to keep it in place. She also got to "hear the heartbeat" and take their blood pressure. It was great. Although she was really out of it, due to the massive emptiness in her tummy, she seemed to like it. When she finally got her IV put in, the child life specialist came in and played with cool toys to distract her. She cried a little,but it went so much better than I had anticipated.
They put her under for the procedure and she did wonderfully waking up. She immediately got her favorite cereal, Cheerios, and was happy as can be. Unfortunately, her colon is still completely inflammed and we are waiting for the pathology results to see if the inflammation has spread to her small intestines. If it has then she has Crohn's Disease, if not she's got Ulcerative Colitis. Both are chronic diseases (she'll have them her whole life) but hopefully with the right medication we will be able to get it into remission. Both are apparently very painful diseases, but she doesn't ever complain or even indicate that she hurts. I'm so grateful for that.
This has really been a trial for Phil and I. I once told my mom that I didn't sign up for this, but I know that the Lord obviously knew I could handle it. Our lives have changed, but looking back at the last 18 months, I think that it has taught us some things and eventually will bring us that much closer to our Heavenly Father. I know that He sent Kaylin to us and that he knew she and we could handle this. It has been frustrating and we have shed many tears, but she's our little girl and she is perfect in every other way. Sometimes it is just hard to see them get something like this when they are so young.
Thanks for letting me ramble on...and thanks to those that have prayed and fasted for our little girl.
The flowers I got from Phil for being such an awesome wife and mother.






6 comments:
Hey Bec!! That's so sad...I totally read all of your "ramblings..." Hopefully they will find out, once and for all, what is up with Kaylin and figure out a good treatment! So my friend, Rachel (in my ward) is doing an internship as a Child Life Specialist! I think I'll have to show her your blog posting so she knows how cool it is to have one there with your child. She loves it so far, and is planning on doing that as a career. Anyway, love you mucho. Zachary looks SOOOOOOOOOO cute :) Even if he is pooping :)
Rebecca and Phil,
My heart aches for your little girl! I knew that things were hard but I did not know how hard. What a sweet little miracle Kaylin is. She strengthens my testimony. Thank you so much for sharing. I know it helps to share. Kaylin and you guys will be in our prayers. Kaylin could not have gone to a better set of parents. How blessed you are to have eachother! Love you guys!!
You are a strong Mama Rebecacita! Keep up the good work.
Hey Rebecca, just going through some old e-mails and found one with a link to your blog. Hope you don't mind me checking in on how your life is going. So sorry to hear about your little girl. I don't know if I've ever told you but our little girl was born with some major health problems so has been in and out of the hospital since she was born. So, I can relate really well with your experiences. During one frustrating, extended hospital stay someone told me that the Lord only sends His special children, those that would require a bit more love and patience in life, to special parents. That has really helped me get through some difficult times when doctors simply couldn't give us any answers. Anyway, sounds like your little girl was sent to some special parents. I wish you the best of news with these latest tests.
I am so thankful that you included how the Lord has helped you through this process. I don't know if I am teary-eyed because I am tired or if I am touched, but either way my heart goes out to you and your brave little girl. I can't imagine having to withold food from my child. That is torture. I pray for you.
What a trooper she is! So hard for someone so young to have to go through! But she has amazing parents to help her through it!
Hope all is well with you guys!! We miss ya!
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